Family Voices of North Dakota
Health Information and Education Center
Family Voices of ND
State Affiliate Organization.
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities. Through this national network, Family Voices provides families tools to make informed decisions, advocates for improved public and private policies, builds partnerships among professionals and families, and serves as a trusted resource on health care.
The FVND Health Information and Education Center is funded in part by the Maternal and Child Health Bureau through the Affordable Care Act:
The FVND HIEC provides:
Provide assistance to families in accessing services and resources for their children and how to partner with providers and caregivers
Listen to families as they describe their encounters with systems and help guide them to possible solutions
To work with families, health care providers, public and private agencies, and advocacy or support groups to promote family-centered care and medical homes for children with special health care needs
To promote discussion and linkages among families, providers, managed care programs, and government to better serve the health care and related needs of children and families in North Dakota
Welcome Parents, Family members, Advocates, and Professionals to the Family Voices of North Dakota Health Information and Education Center for families who have children with special health care needs: disability, chronic illness, physical or mental health conditions. We're here to help you locate resources, assist in navigating complex systems, promote linkages and discussions....What can we assist you with today??
Family Voices of North Dakota Mission:
Family Voices aims to achieve family-centered care for all children and youth with special health care needs and/or disabilities.
Through our national network, we provide families tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Family Voices of North Dakota was started in 1996 and became a State Chapter formally sanctioned by the national organization in the first quarter of 2001
Confused about how the new health reform law really works? This short, animated movie -- featuring the "YouToons" -- explains the problems with the current health care system, the changes that are happening now, and the big changes coming in 2014.
*NEW*Join the Family Voices North Dakota Parent to Parent Program at BigTent.com
This site will:
· Give you the opportunity to chat and connect with other parents.
· Allow you to view a calendar of events for ND families.
· Allow you to add events to the calendar.
· Allow you to share photos with other parents.
Just click on the above link, sign in and have fun! Join today!
If you have any questions about BigTent,
please call Missi at 290-8711
Family Voices of North Dakota is pleased to present our new video and public service announcement for Good Health TV
WE Need more Support Parent for the Parent to Parent Program. If you would like to be a support parent for another parent we have a new online interactive training! Click on the Parent to Parent Training below
TBA he Parent Leadership Institute will be held June 2013.
If you would like to register for this workshop
Family Voices of ND will be a partner in the SAND grant
Supporting Autism in ND (SAND)
Watch for updates soon
Please See Our Topical Call Center Page for Recordings of the FVND Learning Series for Families and Providers
FVND at the White House
On Tuesday, June 22, Donene Feist, Executive Director of Family Voices of North Dakota, attended a presidential press conference at the White House! Ms. Feist was accompanying fellow North Dakotan Jennifer Restemayer, whose daughter, Allison, has Mucopolysaccharidosis type 1 (MPS 1), a genetic disorder that requires very expensive medication. The Restemayers are in danger of soon reaching their insurance policy's lifetime limit, so they should be helped by the health care reform law, which bans lifetime limits for plans beginning on or after September 23 of this year.
For more on the event:
For more on the law, read the Administration’s Fact Sheet-
Today's Washington Post (page A3) has a story about the meeting with health insurance companies that took place just prior to the press event. At the meeting, the President warned the insurers not to use the health care reform law as an excuse to raise premiums excessively. See
Resources for families and providers:
Call our toll-free number
(888)-522-9654 or local (701) 493-2634
Drop us a line or a referral at
FVND PO Box 163, Edgeley ND 58433